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Diagnosed with Pulmonary Fibrosis? What Do I Do Next?



Pulmonary fibrosis is a disease where there is scarring of the lungs-called fibrosis-which makes it difficult to breath. This is because the scarring causes the tissues in the lungs to get thick and stiff and makes it hard to absorb oxygen into the bloodstream.

 

If you have been recently diagnosed with pulmonary fibrosis, consider making an appointment with a pulmonologist who has experience caring for patients with Pulmonary Fibrosis or PF. A knowledgeable team of experts will help make sure you receive an accurate diagnosis and the most up-to-date treatments and management recommendations.

 

To assist you in finding pulmonologists nearest to your home who provide expert care to patients with PF, the Pulmonary Fibrosis Foundation established the PFF Care Center Network., which includes medical centers throughout the United States. You can search for the PFF Care Center Network medical center closest to you.  

 

We also recommend that you join a pulmonary fibrosis support group. Connecting with other individuals facing the same illness can help you and your family feel less alone in your journey with pulmonary fibrosis. Support groups can supplement the care you receive from your healthcare team by providing emotional support and education. You can find a list of support groups here.

 

Support groups can help those living with pulmonary fibrosis to:



  • Learn about their disease and available treatments

  • Feel supported by others who share similar experiences living with PF

  • Learn to navigate the healthcare system more effectively

  • Improve coping skills, connect with helpful resources, and more

Contact the PFF Help Center by calling 844.TalkPFF (844.825.5733) or email help@pulmonaryfibrosis.org. They can help answer your questions, discuss your concerns, and connect you with resources.

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